SPECIAL REPORT: VERY Exciting News!!!

Olivia has been approved for a grant through the Dravet Syndrome Foundation that will provide her with a Coolsport Cooling Vest and an Emfit movement/seizure monitor!!!! This is a huge, awesome, amazing, wonderful, LIFE-CHANGING gift!! http://www.dravetfoundation.org/pag.html

The Coolsport Vest arrived today and the Emfit Monitor is on its way. The vest is the best one available to help her endure the too-hot temps of summer. Some days are too hot for Olivia to even go outside at all (as the heat is a seizure trigger) and having this vest will allow her more freedom. This vest is not likely to be covered by insurance and costs $130 before shipping. http://www.coolsport.net/index2.html

The Emfit is a monitor for her bed that will detect seizure movements or if she escapes the bed. Olivia is at great risk for SUDEP and nocturnal seizures. This monitor will afford me more peace of mind at night as it will be able to detect and alarm during seizures that I could otherwise sleep through. This monitor is NOT covered by insurance, and it costs at least $600 before shipping.  http://www.emfit.com/en/care/products_care/movement-monitor/ 

Through this amazing grant program, The Dravet Syndrome Foundation is providing these two LIFE-CHANGING items to Olivia, FREE. They are able to provide grants such as this through the generosity of donations acquired either directly or through fundraising events. I strongly encourage you to donate, if at all possible, any amount, because it will go toward helping change the lives of other sweet kiddos like Olivia. There was NO OTHER way we were going to get these items as funds are so limited for us. This is truly a blessing I could never say "Thank you" enough times for.

Please visit The Dravet Syndrome Foundation at http://www.dravetfoundation.org/, to see the amazing things they are doing and how you can join them!!

My heart is SO full of love and gratitude!
-Hilary