Sunday, April 3, 2011

Here's a little update on things: Olivia has been doing pretty well overall. We still ride the daily Dravet roller coaster of course, but we have only had one EMSA call lately and no hospital trips. So, we call that decent. She seems to have finally kicked the last of the winter illnesses only to have been relentlessly attacked by allergies for weeks now. Even allergies lower her seizure threshold, cause her to run a low grade fever and create such nasal congestion that it would impede her emergency medication. Allergies for pete's sake. I THINK I finally have it under control just as of today actually. Today was the first day I realized I hadn't used a tissue on her repeatedly all day long. Her doctor switched her from Zyrtec (once a day) to Allegra (twice a day) and she still is on her nasal spray, Atrovent (twice a day). I offer the details for any other Dravet mommas who might be dealing with the same issues, so they can know what has worked for us.

Olivia has been having increased daily seizures, which for her means pretty much a grab bag of all her seizure types excluding the generalized tonic/clonics (grand mal). So, she has been keeping me extremely busy for....well, gee, I don't really know how long now. I guess this last intense period has been building all year so far really. Of course, truthfully, Olivia has kept me way too busy ever since she was born!

SPEAKING OF!!! Duty calls......Must cut this update short. I will return with more info as soon as I can. Until then, take care!

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