We began the home health nursing approval process today, which basically consisted of an initial meeting with the nurse case manager from the home health agency. She was very nice, and I really like the company so far. They are also our medical equipment company and have proven themselves to be incredibly efficient. I had to basically arm the nurse with loads of info about Dravet, our daily life, health history, and all that sort of thing. One of the things that was just running through my mind a moment ago (this is many hours later after the appt and, of course, my brain is still churning--ha), was the line of questions she asked me regarding Olivia's seizure frequency. It has most certainly increased and not surprisingly for the condition as it is progressive. But, the thing that struck me was when she asked if there was ever a day she didn't have a seizure. And, without hesitation, I said, "Oh no. She's never had a day without a seizure. Not since about 9:00p Feb 14, 2010."

...............................WOW............................

As the woman reacted and then made her notes. I just sat there quietly realizing the enormity of what I had just said. My precious Olivia has seized every day--EVERY day--for more than the past year. That's a lot. My guess is her average right now is around 100 a day, but I really don't know. They are way too hard to count. I am awaiting her recent EEG results, and that may give me more of a clue, but then again it's only a snapshot of time. So, all I can say for sure is that I know she is having a whole lot more than she used to, and like I told the nurse--Olivia never gets a day off.

I sure do adore my sweet baby girl. I am SO very proud of her. She is the strongest person I know.

COMING SOON: Updated report on development! Olivia has been doing some fun and exciting things in this area that I can't wait to share with you all!